Faculty: Mark Frisse, MD, MBA, Vanderbilt University; Adam Wilcox, PhD, Columbia University; Dean Sittig, PhD, The University of Texas Health Science Center at Houston; Michael Kahn, MD, PhD, University of Colorado, Denver; Marianne Hamilton Lopez, MPA, AcademyHealth
Format: On-demand, streaming presentation with voiceover
Duration: 90 min.
Overview: The second webinar in the 2012 EDM Forum series addressed the critical role of biomedical informatics in collecting, processing, and representing medical data for use in CER and PCOR. Presentations compared six different clinical informatics technology platforms that are currently used for research (e.g. i2b2 and CER Hub); discussed the tradeoffs inherent to data collection across a variety of strategies, including mobile devices; explored the current peer-reviewed literature at the intersection of clinical informatics and CER; and described the desirable characteristics of data models that can be used for CER.
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Mixed Methods in Delivery System Settings
March 7, 2012
Archived Recording
Faculty: Lucy A. Savitz, PhD, MBA, Intermountain Healthcare; Bruce Bayley, Ph.D, Center for Outcomes Research and Education (CORE);
Susan L. Moore, MSPH, Denver Health
Format: On-demand, streaming presentation with voiceover
Duration: 90 min.
Overview: This webinar describes and discusses unique issues in conducting mixed methods studies in health care delivery settings and how mixed methods can be useful in assessing approaches to generate evidence using Electronic Health Records (EHRs). Panelists draw on more than forty years of collective experience in conducting studies in three delivery systems, including both inpatient and ambulatory service settings. Real-world examples are used to depict key points and considerations that need to be addressed in study design and protocol development for both qualitative and quantitative data collection, particularly in the context of using mixed methods approaches to enrich understanding of clinical data from electronic health records.
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Protecting Human Subjects and Their Data in Multi-Site Research
August 16, 2012
Archived Recording
Faculty: Clete Kushida, MD, PhD, Stanford University; Harold Luft, PhD, Palo Alto Medical Foundation Research Institute (PAMFRI); Keith Marsolo, PhD, Cincinnatti Children's Medical Center
Format: On-demand, streaming presentation with voiceover
Duration: 90 min.
Overview: For multi-site research networks using electronic clinical data (e.g. electronic medical records), governance - including data security and privacy - is critical. This webinar presents two new papers from a July 2012 special supplement in Medical Care, moderated by Dr. Hal Luft, director of the Palo Alto Medical Foundation Research Institute (PAMFRI). Dr. Keith Marsolo from Cincinnatti Children's Medical Center presents a review of data governance strategies to facilitate IRB review for multi-site research; and Dr. Clete Kushida from Stanford University addresses considerations for protecting individual privacy when using 'hard coded' data, such as patient x-rays and genetic samples.
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Mixed Methods in Delivery System Settings
March 7, 2012
Archived Recording
Faculty: Lucy A. Savitz, PhD, MBA, Intermountain Healthcare; Bruce Bayley, Ph.D, Center for Outcomes Research and Education (CORE);
Susan L. Moore, MSPH, Denver Health
Format: On-demand, streaming presentation with voiceover
Duration: 90 min.
Overview: This webinar describes and discusses unique issues in conducting mixed methods studies in health care delivery settings and how mixed methods can be useful in assessing approaches to generate evidence using Electronic Health Records (EHRs). Panelists draw on more than forty years of collective experience in conducting studies in three delivery systems, including both inpatient and ambulatory service settings. Real-world examples are used to depict key points and considerations that need to be addressed in study design and protocol development for both qualitative and quantitative data collection, particularly in the context of using mixed methods approaches to enrich understanding of clinical data from electronic health records.
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Expectations for Patient Centered Outcomes Research: Implications of Electronic Clinical Data
October 19, 2011
Archived Recording
Faculty: Molly Coye, M.D., M.P.H., M.A., Chief Innovation Officer; UCLA Health System; David Lansky, Ph.D., President and Chief Executive Officer of the Pacific Business Group on Health (PBGH); Alice Leiter, J.D., Director of Health Information Technology Policy at the National Partnership for Women and Families; Musa Mayer, M.S., M.F.A., Breast Cancer Survivor, Author, Advocate., AdvancedBC.org
Format: On-demand, streaming presentation with voiceover
Duration: 90 min.
Overview: The emergence of new data from electronic health records and other sources opens up opportunities to support, develop, and conduct research that better meets the needs of multiple end-users, including patients and consumers. In parallel, an increased focus on patient and consumer engagement in research processes is evident through many new policy initiatives, the inclusion of patient reported data in research projects, and the creation of the Patient Centered Outcomes Research Institute (PCORI), which recently issued a draft definition of Patient Centered Outcomes Research (PCOR). During this session, panelists commented on the potential implications of these new data streams for PCOR, and shared their expectations and hopes for what they could mean to their respective constituent groups.
Note: This webinar is a follow-on to the September 14th event titled: “New Strategies for Engaging Consumers in Development and Use of Evidence” which discussed the growing set of questions for comparative effectiveness research (CER) projects around how, when, and to what extent to engage patients and consumers in figuring out what works best for whom, and under what conditions.
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New Strategies for Engaging Consumers in Development and Use of Evidence
September 14, 2011
Archived Recording
Faculty: David Flum, University of Washington; Brian Quinn, Robert Wood Johnson Foundation; James Ralston, Group Health Cooperative; Claire Snyder, Johns Hopkins University
Format: On-demand, streaming presentation with voiceover
Duration: 90 min.
Overview: As health care evolves to become more patient-centered, the role of patients and consumers in the evidence generation process is expanding. This expansion has given rise to a growing set of questions for comparative effectiveness research (CER) projects around how, when, and to what extent to engage patients and consumers in figuring out what works best for whom, and under what conditions. The research community will increasingly be called upon to take into account new perspectives and priorities according to the needs and interest of patients and consumers, but how?
Advances in the Use of Electronic Clinical Data for Prospective Patient Centered Outcomes Research
August 17, 2011
Archived Recording
Faculty: Ned Calonge, The Colorado Trust; Gurvaneet Randhawa, Agency for Healthcare Research and Quality; Beth Devine, University of Washington; John Steiner, Kaiser Permanente Colorado; Adam Wilcox, Columbia University; Erin Holve, AcademyHealth
Format: On-demand, streaming presentation with voiceover
Duration: 90 min.
Overview: This session will provide an introduction to the EDM Forum and highlight a set of 11 research activities focused on harnessing the potential of electronic data systems to advance the science of CER and patient-centered outcomes research (PCOR) as well as improve the quality of clinical care and enhance clinical decision support.